Publications & Presentations

Books:
My Imaginary Illness: A Journey into Uncertainty and Prejudice in Medical Diagnosis. ILR-Cornell University Press, The Culture and Politics of Health Care Work Series, 2010. E-book publication February 2015.

Peer- reviewed articles:
“A Qualitative Study of the Role of Model Clinical Practitioners yields a Framework for the Management of Patients with Medically Unexplained Physical Symptoms.” British Medical Journal Vol 6, Issue 12; 23 Jan 2017; (BMJ Open 2016;6:e012379. doi:10.1136/bmjopen-2016-012379).

“The Meaning of Patient Experiences of Medically Unexplained Symptoms.” Qualitative Health Research 1-10. 1049732314566326, first published on January 12, 2015.

“Silos of Silence, Stress and Suffering: Patient And Physician Experiences of MUPS and Diagnostic Uncertainty.” Special issue of American Journal of Bioethics: Neurosciences 4:3 (July-Sept 2013).

“Two Mothers’ Choices: Disability, Gender, Sexuality and Prenatal Testing.” Cultural Studies – Critical Methodologies, Volume 8; No. 1; 2008; pp. 106-129.

“Critical Disability Theory.” (Review) Canadian Journal of Law and Society Vol 22, No 1, pp. 145-148 (2007).
“A Cripple at a Rich Man’s Gate: A Comparison of Disability, Employment and Anti-discrimination Law In the United States and Canada.” Canadian Journal of Law and Society Vol 21-2, January 2007 pp. 87-111.

“The Failure of Formal Rights and Equality in the Clinic: A Critique of Bioethics.” Ethics & Medicine Volume 21:3, Fall 2005.

Book- Chapters:
“The Limits of Liberal Values in the Ethical Assessment of Genomic and Technologic Innovation.” Chapter in Democracy, Public Participation and Genomic and Technologic Innovation, Edited By Edna Einseidel and Kieran O’Doherty; University of British Columbia Press, 2012.

“Trading Patients.” In Telling Stories Out of Court: Narratives about Women and Workplace Discrimination. Ruth O’Brien (Editor); Liza Featherstone (Foreword). Ithaca, ILR-Cornell University Press. Ithaca, N.Y.: 2008.

“Civil Rights Backlash: An Examination of the US ADA and of Canadian Law on Disability,” Encyclopedia of Disability, Sage Publications, 2006.

“Covering My Tracks.” In Disabled: Faculty and Staff in a Disabling Society. Multiple Identities in Higher Education. Ed. Mary Lee Vance. Association of Higher Education and Disability, Huntersville, North Carolina, 2007.

“A Chair Unseen.” In Voices from the Edge: Narratives about the ADA. Edited by Ruth O’Brien. Oxford University Press, 2004.

Non-refereed publications:
Book review: Elizabeth Neill, Rites of Privacy and the Privacy Trade. University of Toronto Quarterly. Fall 2002.
Book review: Radha Jhappan, ed., Women’s Legal Strategies in Canada. Labour/Le Travail, Spring 2003.
Book review: Ruth O’Brien’s Crippled Justice. The Ragged Edge Magazine, 2001.
Various opinion editorials and articles in trade newspapers and journals. 1999 – present.
NYD- Not Yet Diagnosed, NFB (English) documentary, Workweek Television Productions, 48 min; 1997.

Publications Under Construction:

Books:
The Ethics of Everyday Life: A Memoir. Book manuscript being drafted. Book proposal, draft outline of 8 chapters and, 2 chapters with book agent.

I is for Illness – a book length monograph tapestry/collage of genetic and medical research, genealogy and archival research, historical fiction and memoir which explores the incidence of inherited neurologic disease in the Quebec Founder Population which arrived in North America in the early1600s and whose descendants bear the names, genes, social mores and behaviours of their ancestors in the 21st century.

Peer-reviewed articles
“Disability Sucks.” A socio-legal reflection on the difficulty of pursuing equality and autonomy using disability as an identity framework. Being drafted for Disability and Society or DisabilityZ Studies Quarterly.

“A Reflection on the Legalization of Physician-Assisted-Dying in Canada.” Being drafted for submission to Health Law . Proposes that physician assisted dying is less a question of medical diagnosis and more one of the social/relational/financial/environmental context of individual patients which determines whether their conditions constitute ‘intolerable suffering.’

“Vulnerability, Human Rights and Canadian Constitutionalism: An Exploration of Martha Fineman’s Vulnerable Subject.” Being drafted for Canadian Journal of Law and Society